After having two days of neuro-feedback this week, I saw a large difference in how much I can move my legs, as well as how much sensation is returning. This was however, the first time I felt a large movement from the neurofeedback starting in my legs and shooting up into my torso. A the time I described it as similiar to the feeling of opiate Pain medication, which was a big push in my torso and light headedness.
The big difference I did notice this week was I finally felt the fatigue effects thursday and a little on Friday. It wasn't a bad feeling by any means, but my body was just wanting not to move around too much. Even with that, I still have not been using a cane or any assistive devices. For me it is a HUGE mental victory being to walk around and not being relaint on something just to get around my house. I have used a wheelchair, walker, and cane in public, and there was nothing I hated more then people staring at me or thinking there's something wrong with me. I can understand why I would seem weird to see such a young person so disabled, but I don't believe they understand how deeply it hurts the person.
On the positive end, everyone that has been seeing me has commented on how "back to normal" I look. Which is something I haven't heard in a very long time. I love being able to stand in a room full of people and bein the tallest person in the room again. I really love looking down at people more then looking up. Not to forget that I have been working at the recording studio and going to guitar class. I know that for the first time since I have had surgery I am actually playing confidently again. It took over a year of huge ups and downs in how well I could play. There would be times where I would have guitar lessons, and not be able to play guitar at all myself.
All in all I am very grateful of how far I have come, I look forward to the little victories I am having day to day over small tasks that used to be daunting.
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